Collection of Self-Reported Disability Data in Medicaid Applications: A Fifty-State Review of the Current Landscape (SHVS Brief)
Authors: Emily Zylla and Elizabeth Lukanen, SHADAC
Very little is known about people who self-identify as having a disability within the Medicaid program who are not a part of the group that qualifies for benefits through a disability-related eligibility category.
Collecting better demographic data about the types of disabilities Medicaid enrollees experience is vitally important so that inequities can be identified, and resources and programs can be tailored appropriately.
This issue brief provides an overview of current disability data collection standards and documents how states are collecting self-reported disability information on their Medicaid applications. The information presented draws from the State Health Access Data Assistance Center’s (SHADAC’s) review of paper Medicaid applications for all 50 states and the District of Columbia alongside online applications for 36 states and the District of Columbia. Read the brief in its entirety here.
About the Authors/SHVS:
State Health and Value Strategies (SHVS) assists states in their efforts to transform health and healthcare by providing targeted technical assistance to state officials and agencies. The program is a grantee of the Robert Wood Johnson Foundation, led by staff at Princeton University’s School of Public and International Affairs. The program connects states with experts and peers to undertake healthcare transformation initiatives. By engaging state officials, the program provides lessons learned, highlights successful strategies and brings together states with experts in the field. Learn more at www.shvs.org.
This issue brief was prepared by Emily Zylla and Elizabeth Lukanen. The State Health Access Data Assistance Center (SHADAC) is an independent, multi-disciplinary health policy research center housed in the School of Public Health at the University of Minnesota with a focus on state policy. SHADAC produces rigorous, policy-driven analyses and translates its complex research findings into actionable information for states. Learn more at www.shadac.org.